an insight into my life with severe asthma, advocacy, awareness & research
I am well aware I have neglected my blog and there have been no posts for sometime. I have sat down so many times to try and write but just nothing comes out. If I am honest I have been struggling a lot over the past 4-5 months. I feel lost in myself and couldn't… Continue reading Finding my Positive Mental Attitude
I haven't written a blog post in quite a while now. I have started plenty but have not had the concentration to write a full post and have it in a state where it is ready to be posted. While I never proof read my posts I do like to make sure that there are… Continue reading Being honest about struggling with my health.
5 years ago Im sure the general population probably had no idea what the sunflower lanyard was and what the sunflower symbol stood for. You probably never saw anyone wearing a sunflower. Pre covid travel. I would wear a mask on the plane as always get off the plane with some sort of bug along… Continue reading Has the value of the sunflower lanyard changed? What does it mean if you are wearing one now?
https://youtu.be/sYYjzNS3c3A I was asked to record a video for part of the Respiratory Critical Care session at the European Respiratory Society Congress. The session was titled "New Developments in Mechanical Ventilation and Ventilator Weaning" and my video was to focus on my experience of being weaned from a ventilator. Im not going to lie it… Continue reading Patient Experience of Mechanical Ventilation
not a good combination. A few weeks ago in the press there was a lot of interest in the story surrounding the UK inhaler group Vectura and Philip Morris International. Philip Morris International is one of the largest if not the largest tobacco company in the world. Vectura is a pharmaceutical company in the UK… Continue reading Inhaler industry + tobacco industry= ……
but the publishing of my story in The Lancet Respiratory Medicine left a really bad taste in my mouth. The article was published back on the 7th July but I didnt know this. I didnt know until yesterday that it was live. I didnt find out it was live because The Lancet got in touch… Continue reading My Story living with severe asthma
Clinicians showing vulnerability and learning from patients is so refreshing. This is my recent experience which I wanted to share as I hope it will allow patients to understand clinicians but also hope that any clinicians reading this will understand what is important to us as patients. My involvement in the Severe Heterogenous Asthma Research… Continue reading Patient Aims vs Clinician Aims when managing long term conditions
If I had to be honest I was not sure what I thought would be the outcome of the Stakeholder Board Meeting for SHARP an ERS Clinical Research Collaboration. During my time as a patient involved in research I have been to many meetings, board meetings, scientific meetings and each time gone into the meeting… Continue reading An inspiring few days at the SHARP Stakeholder Board Meeting
The following blog post was shared on the Asthma UK Centre for Applied Research website. I was so privileged to speak at the Lung Health Cross Party Group meeting at the Scottish Parliament. I spoke about digital health and how I have integrated smart technology in my life. "Following her presentation to the Scottish Parliament… Continue reading Discussing smart technology for asthma self-management at the Lung Health Cross Party Group at the Scottish Parliament
It seems the entire country (I mean all 4 Scotland, England, Wales and Northern Ireland as well as Ireland) are waiting with baited breath as to when everyone will get vaccinated. Everyone will get the vaccine in time but we just need to be patient. We have managed this long we can manage a little… Continue reading COVID-19 Vaccine
ANONYMOUS-ASTHMA 