Recently I have found most nights I wake myself up having had a nightmare about previous asthma attacks. Nightmare might be the wrong word to use but then flashback is not quite right either. I recollect so vividly some of the scariest asthma attacks I have had. Many of which I have never really remembered… Continue reading Flashbacks of asthma attacks.
Blog Posts
Getting it off my chest.
The small hours of the morning when generally I wake up coughing and pretty wheezy like just now, I find I start thinking about what I am doing and what the point of it all is. This is not going to be a particularly positive post but by getting it off my chest means I… Continue reading Getting it off my chest.
Do you want to be involved in asthma research?
In an interview I did while in Oxford for the first annual scientific meeting for AUKCAR I talk about how and why I got involved. http://youtu.be/1NACwblpRzQ%5D
Botched asthma diagnosis…
Nothing like the sun newspaper to come up with a good headline: I may not be totally accurate in my view that for a long time asthma was a bit of a buzz word within the medical world. From reading and talking to different people it appeared that often people would go to their… Continue reading Botched asthma diagnosis…
Patient and Public Involvement aka PPI
Our Patient and Public Involvement (PPI) Forum lead gave a short course on what PPI is and how to use it in research as well as the benefits of using PPI which is often a forgotten entity in the research process. I was observing this course and chipping in periodically along with one of the… Continue reading Patient and Public Involvement aka PPI
The isolation of chronic illness
Someone I follow on Instagram summed up exactly how I feel my asthma has made me. I used to be almost the opposite of myself. I always want to think that chronic illness does not define who I am but then this is not true at all. I am my chronic illness and I have… Continue reading The isolation of chronic illness
Burns Night
Today is Burns Night. So in true Scottish tradition I will be having haggis for my tea. I love haggis but only ever eat it on Burns night. I do love some of Burns poetry but a lot of it I can understand as it is practically in anther language. But here is his address… Continue reading Burns Night
Out on a saturday night
It was lovely tonight to have some normality. You may think it very odd to be writing a post about being out on saturday night but it was a big deal for me. I still ended up in bed by quarter past ten but have been out since 6pm. I feel really good that I… Continue reading Out on a saturday night
Great Expectations
Yesterday I saw my consultant in clinic. His secretary actually called in the morning to cancel it as Consultant wanted to have a joint appointment in a few weeks to finalise the emergency care plan that was being written should I end up in hospital. However recently I have not been really really unwell but… Continue reading Great Expectations
Guest Blog from Wendy
Continuing with the guest blogs this next one comes from Wendy. Wendy too suffers from more severe asthma aka Brittle asthma. I got to know Wendy I think initially through AUK perhaps and latterly on asthma groups. I think Wendy's blog was one of the first blogs I started reading many many years ago and… Continue reading Guest Blog from Wendy
ANONYMOUS-ASTHMA 