I have written often about being admitted to intensive care or the high dependancy unit or being reviewed by critical care staff and it always something I have just sort of dealt with and not thought to much more about it. That was until last night. I couldn't sleep for tossing and turning thinking about… Continue reading The Intensive Care Unit
Tag: PPI
NHS Research Scotland Away day!
Gosh! Im getting used to being the only patient speaking at research events!!! Today NHS Research Scotland (NRS) held an away day in Edinburgh with a variety of researchers, research managers, R&D, members of the CSO and various others. There was also me- not a researcher, research manager or in any of the other positions… Continue reading NHS Research Scotland Away day!
Asthma Rule 1: ALWAYS have your reliever with you.
On twitter recently you may have seen that I had a small rant about something that happened the other day and I am still reeling over it. I think what got me most is that how are we ever going to change attitudes towards asthma if those with asthma are so cavalier about it. I… Continue reading Asthma Rule 1: ALWAYS have your reliever with you.
Sick leave- what do you do??
Being on sick leave seems to be an all too common occurrence for me. It is never just a day either its weeks and weeks which feels like months and months (well sometimes it is months). Often people say to me they would love to be off for as long as I have been off… Continue reading Sick leave- what do you do??
May is asthma awareness month!!!
May is asthma awareness month. Asthma is a disease which is so misunderstood. Many will live with asthma quite happily and think 'its just asthma' but then there is the small portion of people who battle asthma everyday and just getting up in the morning is achievable because of a concoction of medication and then… Continue reading May is asthma awareness month!!!
#aukcarASM15
The last few days I have been down in Manchester at the Annual Scientific Meeting for the Asthma UK Centre for Applied Research. It was a great few days. all kicked off by an entertaining dinner with the centre director and post grad and network co-ordinator who learnt the value of Twitter and what you… Continue reading #aukcarASM15
What is PPI?
In my blog I have spoken a lot about PPI or Patient and Public Involvement but what does it mean? When hearing the term PPI (apologies for the big assumption) most people will automatically think “payment protection insurance". I must admit I first thought this when I first heard the term PPI. You hear and… Continue reading What is PPI?
AUKCAR PPI update
I still pinch myself as I can't believe I am involved in such a fantastic research centre. AUKCAR is a unique virtual centre incorporating 13 institutes which all have teams of dedicated researchers wanting to make the lives of people with asthma better by addressing three key areas: encourage good asthma control, maximise treatment benefits,… Continue reading AUKCAR PPI update
World Asthma Day 2015
Tomorrow is World Asthma Day aka WAD! This time last year I didnt think too much about it and never even thought I would be where I am today. I was focused on my Step Dad's 60th birthday which happened to fall on WAD. I have never really done much for WAD. However last year… Continue reading World Asthma Day 2015
Patient and Public Involvement aka PPI
Our Patient and Public Involvement (PPI) Forum lead gave a short course on what PPI is and how to use it in research as well as the benefits of using PPI which is often a forgotten entity in the research process. I was observing this course and chipping in periodically along with one of the… Continue reading Patient and Public Involvement aka PPI
ANONYMOUS-ASTHMA 