I find it amazing that after 10 years plus of living like this people around me still don't get how fragile my chest is and something that is very easy for someone to do can cause 2 or 3 days recuperation for me. I had this last night. I just need to get this off… Continue reading People just don’t get it
Blog Posts
Two worlds colliding
Today at work my two worlds sort of collided. I don't really know how to express it but I will try. I can't talk much about my work other than that I am a renal nurse and part of the community dialysis team doing peritoneal dialysis. Mainly for professionalism and patient confidentiality etc it nots… Continue reading Two worlds colliding
Achieving dreams and making targets!!
Since dropping my hours at work I have more time to myself. Which is a good thing but on the other hand it is also not. By working shorter hours I am able to rest because for the first time I am feeling very tired and recognising how tired I feel. By finishing work earlier… Continue reading Achieving dreams and making targets!!
Holding out
When part of you knows you should go and get help, that little person in the back of your head saying its getting to hard and your tired but then with that all important test and appointment coming up you just don't want to give in. This is how I feel just now. Many… Continue reading Holding out
Falling out with your medical team?
I feel like I have fallen out with my reps team. I know patients don't actually fall out with their Dr's like you do with friends- its more you have difference of opinions etc. Recently I saw a second consultant which I wrote about before. I was feeling really positive after seeing him and thought… Continue reading Falling out with your medical team?
Asthma 1 : Olive 0
Once again asthma has prevailed and won the battle with me. No I am not on my way to hospital or being admitted but am succumbing to the hold that asthma has over my life. I have to cut my hours at work now because of my asthma. A career I love doing and don't… Continue reading Asthma 1 : Olive 0
Just all a bit too much
I always know when I am not feeling my best because I sleep and lounge around. Even though a lot of the time when I am struggling with my breathing I need to rest and lounge around but I often feel like doing the opposite. I find it hard to rest and try and push… Continue reading Just all a bit too much
Another appointment another day off spent at the hospital
Today was my day off and because its a day off that must mean that I have a hospital appointment in it at some point!!! It just would not be a day off if I was not seeing a GP or Nurse or Consultant. Today it was the respiratory nurse specialists. The usual lung function… Continue reading Another appointment another day off spent at the hospital
Second Opinion Appointment
Last week I had my appointment I have been waiting for since March. It feels like a life time I have waited!! But it has come and gone. It went so quickly. Thankfully the Dr I saw was great and so far seems really proactive. He is going to get in touch with my old… Continue reading Second Opinion Appointment
Tee-total ish
Over the years I have never been a particularly big drinker or consumer of alcohol however since my asthma has started getting worse I experienced a few bad situations which now has led me to make the decision to really not drink alcohol at all. I do have the odd glass or wine or two… Continue reading Tee-total ish