In March/April for me my asthma care hit a wall and I could no longer continue as I was. Despite my consultant being one of the best in the field of difficult to control asthma I was getting no where, I was feeling lost, totally out of control and no idea what I was doing… Continue reading New horizons- not knowing how to feel!
Being on sick leave seems to be an all too common occurrence for me. It is never just a day either its weeks and weeks which feels like months and months (well sometimes it is months). Often people say to me they would love to be off for as long as I have been off… Continue reading Sick leave- what do you do??
I spoke too soon. I wonder if I tempted fate by getting excited about the recent success of my oral steroid reduction. I felt not too bad after the first few days after I reduced but I then started to feel not great. I can't put my finger on what it was exactly but I… Continue reading Spoke too soon!
For any asthmatic or any person who needs to be seen in a clinic or Drs surgery they will more often than not be requested to do some kind of breathing test. In a GP setting this tends to be peak flow measuring your peak expiratory flow rate in litres per minute. Pretty much every… Continue reading Breathing tests every two weeks- every patients nightmare
I thought I would write this post just now as I am suffering right as I type from the worst steroid withdrawal I think I have ever had to deal with. (at least I am hoping it is steroid withdrawal and nothing else!!) Although my last dose change was 5 days ago where I dropped… Continue reading Steroid Withdrawal
Yesterday I was a bag of nervous, full of fear and also there was a hint of excitement at what may come of going back to see my old consultant again. She knows me the best. I have known her my whole time since I moved back up to Edinburgh. It was a relief to… Continue reading Clinic and next steps!
Tonight is one of those nights where I am super tired but I just want to cry or scream and really don't know what to do with myself. The air feels thick and I have this overwhelming feeling to stick my head in a cold shower or go outside, although going outside will not do… Continue reading Some nights you just want to cry
Part of having Brittle Asthma means quite a strict daily medication regime but also the constant quest for the magic inhaler, pill or nebuliser which might just be life changing or not even life changing but give you that bit more freedom and better quality of life. A common theme between brittle asthmatics when first… Continue reading What I take and what it all does!
During my last hospital admission I was very apprehensive about seeing my old consultant. I had recently changed consultant out of frustration and fear of losing my job. Just reducing prednisilone and seeing how I go was not working for me when all I wanted was to get better. My current consultant is now based… Continue reading What happens when there is nothing else?
It has been quite a year this year. So much has happened!!! January- I started working in the Community Dialysis Team and it has been fantastic. It has not gone quite as planned. I had hoped that moving to CDT would mean my health would be much better and I would be able to get… Continue reading Review of 2014