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Blog Posts
Support Groups…what is the point and are they useful???
Since developing Brittle Asthma I have found online support groups a huge help and comfort when times are pretty rubbish and dealing with chronic illness has been too much to cope with. Although I would never wish brittle asthma on anyone it is a comfort in a way to know I am not the only… Continue reading Support Groups…what is the point and are they useful???
My best may never be good enough
Lowered threshold to an asthma attack and chest infection. We were discussing asthma attacks and my frustration that despite acting quickly to treat them I tend to end up needing hospital treatment anyway. She said this was because my threshold of an attack was much lower. In essence my everyday level of tightness is much… Continue reading My best may never be good enough
Regular Asthma Input
After world asthma day and the release of the paper highlighting the shocking number of asthma deaths it was suggested that asthma care needs to be improved and asthmatics need regular input. I don't know if it is as a result of this or just coincidence but I now have regular hospital input for my… Continue reading Regular Asthma Input
Kingsbarns
Yes more golf. I may be a golf bore but for me golf is my outlet. I can play golf and get away from everything. It is something I can do no matter how bad I am feeling (within reason), how stressed or relaxed, it doesn't matter. I can be alone with my own thoughts… Continue reading Kingsbarns
Losing my (hated) comfort blanket
The title of this blog doesn't really make sense. Losing a hated comfort blanket. a comfort blanket is meant to be something that protects you and you feel safe with it. Recently I have had a lot of input fro my respiratory team, particularly the respiratory nurse specialists (RNS). I have noticed a massive change… Continue reading Losing my (hated) comfort blanket
Stress and Asthma
Being stressed can make asthma worse. This is something I used to deny a lot and never thought that stress was making my asthma control worse. Over time however and accepting my condition I realised that stress is a big factor. Not the only factor but it does impact control and how you feel. I… Continue reading Stress and Asthma
The Rennaisance
Continuing on my good spell today I had an awesome experience playing a very exclusive golf course. I am lucky and have played at The Rennaisance Club a huber of times but it is a club I would never be able to join because to become a member you need to buy a £75,000 bond.… Continue reading The Rennaisance
Highland Open- Pitlochry
Last week was one of the best weeks I have had in a long time. I go away each year and play in the Highland Open golf tournament at Pitlochry with a group of friends. This year I went with the same group of friends but because of how my health has been and my… Continue reading Highland Open- Pitlochry
Domperidone to Cyclizine
I had a call from my GP recently wanting to see me. It was due to new information out about domperidone. I have taken domperidone for about a year now due to the nauseating effects of theophyline and also prednisilone. It has been working pretty well and I have only had minimal sickness however there… Continue reading Domperidone to Cyclizine