After world asthma day and the release of the paper highlighting the shocking number of asthma deaths it was suggested that asthma care needs to be improved and asthmatics need regular input.
I don’t know if it is as a result of this or just coincidence but I now have regular hospital input for my asthma from a variety of different members of the multidisciplinary team. I see someone every month and discuss symptoms, how much treatment etc I have been needing and what can be done to help me. This has had a really positive impact as I have managed to stay relatively well in doing this. I have not had nearly so many hospital admissions. None since this increased care started which is a massive change from how I was before.
Although I still feel asthma is sitting right on my shoulder and a constant factor in my life it is not dictating my life quite so much.
I am very lucky to have such a good team and have started to be honest with them about the impact it has on my life which has allowed the team to understand me more and able to treat me with more effectiveness as they actually know what is going on rather than me just saying I’m fine!!!
The down side of regular hospital appointments etc is that you are always up at the hospital. I find my days off are coordinated around medical appointments of all sorts!!!! I guess though that is a small price to pay to get the fantastic medical care I am receiving and for getting some sort of health back!!