Blog Posts

I have had a really exciting week this past few weeks and something I never expected. About a week after I got back from London I received an email to say that my name had been given to  another company who had been tasked with putting a book together containing stories from a variety of… Continue reading Healthcare Heros!

Since this last attack and time off work I have more time to myself and thinking about things. I realise how scared I have been since this last attack. Each attack seems to get harder and harder to deal with, and more risk is attached to each one. Despite them being scary and having flashbacks… Continue reading Its ok to be scared.

  Today I had the privilege of meeting some fantastic people at a meeting I was speaking at down in London. My trip is slightly tainted in sadness as I have had to curtail my trip by four days and miss most of the European Respiratory Society Annual Congress because I have not been able… Continue reading There is hope!!

It hardly seems  anytime at all since I first came across PPI and what it was and all it entailed. Starting off small and only doing the odd bits and pieces to now a year and a half down the road and I am more involved in patient and public involvement in research more than… Continue reading Patient and Public Involvement Update!!

This last admission was tough on a lot of fronts. The main one being that I had no idea that coming out of intensive care the ITU team were not happy I was being moved but also that staff who know me on the respiratory ward were all expecting me to be back in ITU… Continue reading What is important to a young patient on a respiratory ward.

I have once again just been discharged from hospital, and a terrifying experience. Back in January I wrote about how I had one of my worst attacks ever, well that one has been trumped by the one I suffered a few weeks back. If I'm honest my chest has not been great for a while… Continue reading Following that red bag again on my way to intensive care.

Its frustrating just now. The weather keeps changing so my chest keeps changing so from one day to the next I don't know what I am doing and what I am going to wake up to each day...if I wake up- a lot of the time Im not sleeping much at all so there is… Continue reading Struggling and battling.

One of the biggest problems I have just now is my sleep. I have never been much of a sleeper but when my asthma is not great it is even worse and I spend a lot of nights tossing and turning trying to get into a position that is comfy and good for breathing, but… Continue reading What do you do when you can’t sleep…you blog!!!

I think I am one of the few people who hate the weather we have just now. Perhaps others with breathing problems might be in my boat but this warm, humid muggy weather is making things really tricky. You don't know what you are getting from day to day as the weather is constantly changing… Continue reading Weather