Blog Posts

This photo reminded me that it was this time of year where everything was turned upside down, inside out and generally mixed up to the point where life has really never been the same again. 13 years ago around this time of year too my breathing, lungs and asthma all changed for the worse and… Continue reading How it all went wrong

#RaiseYourGame I started writing this yesterday hence the beginning part is my preparation for today!!! Tomorrow I am really fortunate and grateful to have the opportunity to speak at the NHS Lothian Nurses and Midwives Research Open Day in conjunction with Edinburgh University and Queen Margaret University. Unlike the last NHS Research event I spoke… Continue reading NHS Lothian Nurses and Midwives Research Open Day!!

Last week I travelled to Bristol for the Asthma UK Centre for Applied Research annual scientific meeting. I really enjoy these meetings as it is an opportunity to meet other members of the patient and public involvement (PPI) group which I do enjoy. With PPI you do a lot of things fro the comfort of… Continue reading AUKCAR Annual Scientific Meeting

With each hospital admission and each trip to critical care it is taking more mental strength than ever to get back to base line. I think with this past december and a few traumatic things happening including the death of my granny and also the death of a friend who suffered from brittle asthma too… Continue reading Recovery

This is how 2018 started for me: (Yes they are TED stockings to prevent DVT's and yes I do know I don't have them on properly but I was so hot and bothered that I couldn't stand them up properly. I even agreed to wear a gown which I never wear if I can get… Continue reading Scared of running out of energy.

I recently asked on my twitter if anyone had any questions about patient and public involvement (PPI) and I got a few messages and emails with questions. I am going to divide my answers into two different posts. One post answering questions asked from a patient perspective and what PPI is like and then another… Continue reading Patient and Public Involvement- What is it all about??

This past week has been really tough and emotionally I feel a wreck. In fact I don't really know how I feel. There is a surreal aspect to everything like everything is a dream and I am just waiting to wake up from it and everything will be alright again. Last week on Wednesday night/… Continue reading Sadness and comfort rolled into 1

Last night I was able to do something I have not been able to do in a long time. I went to my work Christmas night out. I had a fantastic time and really glad I made the effort to go. For a work Christmas night out most will be planning on what they are… Continue reading The cost of 4 hours fun

I was recently interviewed as part of a study to evaluate the impact that patient and public involvement (PPI) has on research specifically within the Asthma UK Centre for Applied Research. Some of the questions made me reflect on my time with AUKCAR, how I got involved, what I enjoy doing, what I am not… Continue reading Ask me questions about Patient & Public Involvement???