Blog Posts

Over the past 4 years that I have kept this blog it has all been about me and my experience and what I feel like and why I do what I do so essentially all about ME!!! It is the point of a blog I guess to write about your thoughts, emotions, actions and what… Continue reading Not just me

The meeting in Oxford was one of the experiences which will go down in my memory as one of the greatest things I have been involved with. The meeting was over 2 days in which various different things were discussed and we had various speakers as well as speaking ourselves as part of PPI. The… Continue reading 1st Annual Scientific Meeting of AUKCAR Oxford

As an asthmatic and one that is really really poorly controlled I would jump at the chance to take part in research/ drug trials just to see if something or anything may make a difference. Sadly there is very specific criteria you need to meet to be able to partake. Almost always you have to… Continue reading When you can’t take part in research trials…..

A lot is happening just now. A mix of good things and some bad. The bad just being my asthma and how it makes me feel but on the other side working less is really paying off and as a result I am starting to feel less tired and have a better medication regime. Focusing… Continue reading Being realistic

On World Asthma Day this year a report into the number of asthmas deaths was released. It was shocking. I was shocked and could never imagine how so many people could die from asthma....but then again after what I experienced recently I can quiet believe how the statistics are so shocking. The report can be… Continue reading How can change ever happen??

Taking action early and recognising the signs of an asthma attack has not paid off. In fact quite the opposite. I think as a result of taking early action has caused me to spend way more time in hospital than required and also has made me question what the point is if this is the… Continue reading 1 night, 2 hospitals, 2 ambulances, 1 first responder and 1emergency bike

Everyone wakes up in the middle of the night for some reason or other and will either roll back over and drift off to sleep or will toss and turn unsettled for the rest of the night. I can't remember the last time I had a full night sleep. One of the problems of my… Continue reading Alone with my thoughts and a 1am neb!!

https://totallyanonymousasthma.wordpress.com/2013/10/25/turning-point/ A year ago almost to the day I made the above post. A post which at the time I never thought I would do. I had never dreamed of wanting to go back on long term prednisilone. But 348 days later and I am still on those tiny tablets I hate so much. At… Continue reading A year ago almost to the day

Working as a nurse I have sadly witnessed death too many times to count. I have seen people die expectedly and unexpectedly neither of which is easy and they never will become easy. One part of my job which gives me comfort I suppose I could call it is when a patient is comfortable and… Continue reading Facing your own mortality