Throughout all of my sporting life severe asthma has played a huge part but it had not stopped me participating until I suffered from complications due to having a severe asthma attack and landing on life support. Throughout all my sporting life however I have always had people question how I can take part in… Continue reading Trying to be an adaptive athlete living with severe asthma
Author: justTUX
Air Pollution and Asthma
"When going out for a walk can be a bit of a gamble" I was asked a while back to write an opinion piece for the climate issue of the British Medical Journal. I decided to focus on my experience of living with severe asthma and the impact that air pollution can have on it.… Continue reading Air Pollution and Asthma
Sport is so much more than just sport. Reflecting on my first season with Edinburgh Giants
Walking into my first practice I had no idea what to expect. My only experience of wheelchair rugby league before that practice in March was watching the Wheelchair Rugby League World Cup during summer 2022- and that was by chance as one of my old lacrosse teammates was a referee at the World Cup. That… Continue reading Sport is so much more than just sport. Reflecting on my first season with Edinburgh Giants
Severe Asthma Peer Support Group is 1 year old.
What started as an idea during lockdown while shielding away from the world feeling lonely and isolated has turned into something I never imagined. I actually forgot that I held the first official virtual severe asthma peer support group meeting in September 2022. It was not until I was writing my notes from the meeting… Continue reading Severe Asthma Peer Support Group is 1 year old.
Accepting when you need some extra help.
It is no secret that the past 22 months have been really hard but I never realised how hard it would be once I had had surgery. Healing is going really well. I cannot believe the job the plastic surgeons have done. They did need to take my umbilical and I do have a nice… Continue reading Accepting when you need some extra help.
I am so angry- the smoking ban is a farce
Anyone who knows me knows my view on smoking and the impact that second hand smoke has had on my lungs both out in the community and in hospital. I have written countless blog posts on the topic as well. I thought September 5th 2022 was going to be a new dawn, that date marked… Continue reading I am so angry- the smoking ban is a farce
Time for an update
It's been a while but I have needed some time to just process all that has been going on recently as it has been a lot. My brain and body for the last 22 months have mainly been preoccupied with the issue I have had with my abdomen. On the 2nd August I finally had… Continue reading Time for an update
(invisible) Disability Pride Month
Pride month has come and gone now and I really didnt get involved in anything this year. Maybe next year. I didnt realise that the month of July focuses on Disability Pride, raising the awareness around various types of disability which can be seen in the flag. The disability pride flag like with many other… Continue reading (invisible) Disability Pride Month
Resigning as Trustee of ICUsteps
This is not a decision I came to easily and many many tears were shed as I mulled over what the best decision was. ICUsteps is a fantastic charity and one I found so rewarding to be involved in from being an attendee at a peer support group, helping set up a national set up… Continue reading Resigning as Trustee of ICUsteps
Severe Asthma Peer Support Group
Last September I started the Severe Asthma Peer Support Group with the support of Asthma + Lung UK. Unfortunately this has not worked out so I am now running the group independently from Asthma + Lung UK. It was not an easy decision to make, and I had many sleepless nights thinking about what I… Continue reading Severe Asthma Peer Support Group