3 and a half years ago I set out to set up a peer support group for people living with severe asthma having had experience of peer support, facilitating and running groups with ICUsteps. I held the first meeting in September 2022 and now the last meeting has been held as I call time on… Continue reading Time is Called on the Severe Asthma Peer Support Group
Tag: severe asthma
Asthma Remission
"Asthma Remission" seems to be a bit of a buzz word just now in both the clinical and academic worlds. It feels like this is the new focus as for years it was "curing asthma". That cure remains elusive so is remission the next best thing. I straddle a few different parts of the asthma… Continue reading Asthma Remission
Competing for Great Britain at the European Para Laser Run Championships
As I write this on the plane home from Madeira I am feeling a huge mix of emotions (I wrote this yesterday on the plane). The pride of representing Great Britain at the first ever European Para Laser Run Championships, frustration at my race being interrupted before it even started with smoke hitting my lungs,… Continue reading Competing for Great Britain at the European Para Laser Run Championships
Accessibility to biologics in the UK
Accessing biologic medication Criteria/ Eligibility for biologic medication Subjective versus Objective criteria Staying on a biologic medication long term I recently gave a talk to some 3rd year Biomedical Science students for their Drug Discovery module at Imperial College London about my experience of living with severe asthma and the various medications I have been… Continue reading Accessibility to biologics in the UK
World Asthma Day 2024: Asthma Education Empowers
Every year more people are diagnosed with asthma but more often than not they get no education about the (sometimes) very complex condition and how best to manage it. This years topic for World Asthma Day is Asthma Education Empowers. I often find that people think because I have had asthma for over 35 years… Continue reading World Asthma Day 2024: Asthma Education Empowers
Feeling lonely in a room full of people
A fellow patient advocate that I follow on social media put up a very profound post yesterday that resonated with me so much. It said how you "can be in a room full of people and still feel lonely". It hit me so hard reading this as it is often exactly how I feel. I… Continue reading Feeling lonely in a room full of people
Trying to be an adaptive athlete living with severe asthma
Throughout all of my sporting life severe asthma has played a huge part but it had not stopped me participating until I suffered from complications due to having a severe asthma attack and landing on life support. Throughout all my sporting life however I have always had people question how I can take part in… Continue reading Trying to be an adaptive athlete living with severe asthma
Air Pollution and Asthma
"When going out for a walk can be a bit of a gamble" I was asked a while back to write an opinion piece for the climate issue of the British Medical Journal. I decided to focus on my experience of living with severe asthma and the impact that air pollution can have on it.… Continue reading Air Pollution and Asthma
Severe Asthma Peer Support Group is 1 year old.
What started as an idea during lockdown while shielding away from the world feeling lonely and isolated has turned into something I never imagined. I actually forgot that I held the first official virtual severe asthma peer support group meeting in September 2022. It was not until I was writing my notes from the meeting… Continue reading Severe Asthma Peer Support Group is 1 year old.
Time for an update
It's been a while but I have needed some time to just process all that has been going on recently as it has been a lot. My brain and body for the last 22 months have mainly been preoccupied with the issue I have had with my abdomen. On the 2nd August I finally had… Continue reading Time for an update
ANONYMOUS-ASTHMA 