Month: December 2017

I recently asked on my twitter if anyone had any questions about patient and public involvement (PPI) and I got a few messages and emails with questions. I am going to divide my answers into two different posts. One post answering questions asked from a patient perspective and what PPI is like and then another… Continue reading Patient and Public Involvement- What is it all about??

This past week has been really tough and emotionally I feel a wreck. In fact I don't really know how I feel. There is a surreal aspect to everything like everything is a dream and I am just waiting to wake up from it and everything will be alright again. Last week on Wednesday night/… Continue reading Sadness and comfort rolled into 1

Last night I was able to do something I have not been able to do in a long time. I went to my work Christmas night out. I had a fantastic time and really glad I made the effort to go. For a work Christmas night out most will be planning on what they are… Continue reading The cost of 4 hours fun

I was recently interviewed as part of a study to evaluate the impact that patient and public involvement (PPI) has on research specifically within the Asthma UK Centre for Applied Research. Some of the questions made me reflect on my time with AUKCAR, how I got involved, what I enjoy doing, what I am not… Continue reading Ask me questions about Patient & Public Involvement???

I had a fantastic opportunity to visit Victoria Primary School in Edinburgh with the Asthma UK Centre for Applied Research. The P7 class had been learning about asthma, how it effects the lungs and breathing, what can make it worse and also what can be done to help it. As part of their learning they… Continue reading Asthma Arcade

One thing I have found often and more so just now is finding those friends who really understand what life is like. I have a great circle of friends but there are only very few who really appreciate how I have to live my life and the accommodations I need to make. I have found… Continue reading Having people who understand

The holy men from columns isles With reverent step and show By cool green dale and still blue loch To others quietly go O’er lonely moor and mountain praise to their god doth rise Eagle startled soars aloft on dawns radient skies   Through narrow gap see shore and loch The voiding Norsemen pour The… Continue reading Rum- A History

Today for me was a day spent reflecting and remembering. Remembering the good times. It is the 6th anniversary of my Grandpa's death. A sad day but also lots of memories which made me smile whether it was walking up Corstorphine Hill in companionable silence only to be questioned by my Granny when we got… Continue reading Grandpa