Month: August 2016

It hardly seems  anytime at all since I first came across PPI and what it was and all it entailed. Starting off small and only doing the odd bits and pieces to now a year and a half down the road and I am more involved in patient and public involvement in research more than… Continue reading Patient and Public Involvement Update!!

This last admission was tough on a lot of fronts. The main one being that I had no idea that coming out of intensive care the ITU team were not happy I was being moved but also that staff who know me on the respiratory ward were all expecting me to be back in ITU… Continue reading What is important to a young patient on a respiratory ward.

I have once again just been discharged from hospital, and a terrifying experience. Back in January I wrote about how I had one of my worst attacks ever, well that one has been trumped by the one I suffered a few weeks back. If I'm honest my chest has not been great for a while… Continue reading Following that red bag again on my way to intensive care.

Its frustrating just now. The weather keeps changing so my chest keeps changing so from one day to the next I don't know what I am doing and what I am going to wake up to each day...if I wake up- a lot of the time Im not sleeping much at all so there is… Continue reading Struggling and battling.

One of the biggest problems I have just now is my sleep. I have never been much of a sleeper but when my asthma is not great it is even worse and I spend a lot of nights tossing and turning trying to get into a position that is comfy and good for breathing, but… Continue reading What do you do when you can’t sleep…you blog!!!