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ANONYMOUS-ASTHMA

an insight into my life with severe asthma, advocacy, awareness & research

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Month: August 2016

Patient and Public Involvement Update!!

August 29, 2016October 2, 2016 justTUX

It hardly seems  anytime at all since I first came across PPI and what it was and all it entailed. Starting off small and only doing the odd bits and pieces to now a year and a half down the road and I am more involved in patient and public involvement in research more than… Continue reading Patient and Public Involvement Update!!

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What is important to a young patient on a respiratory ward.

August 28, 2016October 2, 2016 justTUX

This last admission was tough on a lot of fronts. The main one being that I had no idea that coming out of intensive care the ITU team were not happy I was being moved but also that staff who know me on the respiratory ward were all expecting me to be back in ITU… Continue reading What is important to a young patient on a respiratory ward.

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Following that red bag again on my way to intensive care.

August 27, 2016October 2, 2016 justTUX

I have once again just been discharged from hospital, and a terrifying experience. Back in January I wrote about how I had one of my worst attacks ever, well that one has been trumped by the one I suffered a few weeks back. If I'm honest my chest has not been great for a while… Continue reading Following that red bag again on my way to intensive care.

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Struggling and battling.

August 16, 2016October 2, 2016 justTUX

Its frustrating just now. The weather keeps changing so my chest keeps changing so from one day to the next I don't know what I am doing and what I am going to wake up to each day...if I wake up- a lot of the time Im not sleeping much at all so there is… Continue reading Struggling and battling.

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What do you do when you can’t sleep…you blog!!!

August 11, 2016October 2, 2016 justTUX

One of the biggest problems I have just now is my sleep. I have never been much of a sleeper but when my asthma is not great it is even worse and I spend a lot of nights tossing and turning trying to get into a position that is comfy and good for breathing, but… Continue reading What do you do when you can’t sleep…you blog!!!

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