Having spoken last night with a few fellow bloggers we are starting to feel reluctant to blog about our lives and how our various illnesses effect our day to day living. This is mainly because of a new sub-culture which is evolving. Over the past few months several people have come to light as suffering from munchausens syndrome and also a variation on munchausens by proxy- munchausens by internet!!!
there are a few specific individuals I have noticed to have almost copied my blog style and the things is discuss- my family life, dyslexia, my career path and then the main one brittle asthma. The issue with the internet and exposing people with munchausens is that the interent gives so much detail about diseases so anyone can virtually make up a disease and learn the symptoms and know the medication without actually having the disease itself. But then there are also those who like to say they have symptoms and go to the Dr and get medication. A dr will always prescribe medication for a breathing issue because it is not worth their license to deny medication when someone comes in saying they cant breath!
I have had two people recently fabricate stories about illness to me and be later caught. Both of whom denied this and were adament they had certain disease. having lived with one of the disease- asthma I knwo what it is like and know how the diagnosis takes place and the step guide to treatment etc. I am an expert patient. You cant fool me. I do research into the disease and projects which i hope to be published one day. I know the weirdest symptoms to the most common and people telling me they are not sterotypical doesnt wash with me. I feel like people try to take me for a fool.
I am going to take this step by step. When an individual is trying to present worse at a Dr than they are to get attention or medication or whatever the steps a dr does is simple- get you to do a pf- a primary care dr has limited knowledge in correct technique for pfs and therefore if you give little effort then you have a low pf simple as but the dr is not going to know what technique is correct and what it bad. (I have coughed downa pf machine before to amke my pf higher and my dr didnt say anything!!!)
Allergies- if you are allergic to something it will always come up in a blood test even if it doesnt come up in a skin test. If you are allergic to something your blood will show it. even auto immune diseases show up in the blood. So if you have screeds and screeds of tests and they all come back negative then you dont have allergies or an auti immune disorder. You may be sensitive to stuff but this is not an allergy per say. Although some allergies can suddenly develop it is uselaly because something has happened. or if you are very young it may be on your second exposure to something such as nuts. But suddenly over ngiht becoming allergic to a fruit or something is not going to happen.
Asthma or other breathing disorders are really difficult to live with as are allergies why does anyone want to fabricate they have them. it only makes those with the problems angry and also makes us look bad. There is enough psychological stigma attached to having a severe illness without people making up that they ahve it. Often you go throught years of tests and medication before the right combination is found and those years are hell. karma will come to those who want to have an illness when they are actually healthy. it will come back and bite you on the arse with more serious consquences than you could ever imagine.
Rant over. but to the peopel i am talkig about. Grow a pair and be lucky you have lungs that work and are not dependant on pills and inhalers. I am dam lucky I am as healthy as I am as I know people facing transplant etc. Think about it!
I will continue to blog as I have been. But if I come across someone bloggin who is copying stuff from my blog about illness etc I will publically say you blog and you name on my blog and say why I think you are a fraud. I know a blog is in public and people can take what they want from it but I will out you and shame you.