an insight into my life with severe asthma, advocacy, awareness & research
Life always comes full circle. The reason for starting this blog almost 20 years ago was because I was frustrated with how little was known about severe asthma and how misunderstood the condition was (also a little bit of a pity party). I was also upset and angry because it felt like everything I ever… Continue reading This will be the last post from me here
"Asthma Remission" seems to be a bit of a buzz word just now in both the clinical and academic worlds. It feels like this is the new focus as for years it was "curing asthma". That cure remains elusive so is remission the next best thing. I straddle a few different parts of the asthma… Continue reading Asthma Remission
As I write this on the plane home from Madeira I am feeling a huge mix of emotions (I wrote this yesterday on the plane). The pride of representing Great Britain at the first ever European Para Laser Run Championships, frustration at my race being interrupted before it even started with smoke hitting my lungs,… Continue reading Competing for Great Britain at the European Para Laser Run Championships
Every year more people are diagnosed with asthma but more often than not they get no education about the (sometimes) very complex condition and how best to manage it. This years topic for World Asthma Day is Asthma Education Empowers. I often find that people think because I have had asthma for over 35 years… Continue reading World Asthma Day 2024: Asthma Education Empowers
Throughout all of my sporting life severe asthma has played a huge part but it had not stopped me participating until I suffered from complications due to having a severe asthma attack and landing on life support. Throughout all my sporting life however I have always had people question how I can take part in… Continue reading Trying to be an adaptive athlete living with severe asthma
"When going out for a walk can be a bit of a gamble" I was asked a while back to write an opinion piece for the climate issue of the British Medical Journal. I decided to focus on my experience of living with severe asthma and the impact that air pollution can have on it.… Continue reading Air Pollution and Asthma
What started as an idea during lockdown while shielding away from the world feeling lonely and isolated has turned into something I never imagined. I actually forgot that I held the first official virtual severe asthma peer support group meeting in September 2022. It was not until I was writing my notes from the meeting… Continue reading Severe Asthma Peer Support Group is 1 year old.
It's been a while but I have needed some time to just process all that has been going on recently as it has been a lot. My brain and body for the last 22 months have mainly been preoccupied with the issue I have had with my abdomen. On the 2nd August I finally had… Continue reading Time for an update
And what does severe asthma look like? Does having severe asthma look like this? Is this what severe asthma looks like? In all the photos above I have severe asthma (some of them are a lot older than others). In the top photos it doesn't look like there is anything wrong with me but the… Continue reading What is severe asthma really??
Has anything really changed in the asthma landscape since World Asthma Day 2022? For the day to day living with asthma really not much has changed. The same frustrations are still there and sadly I think they will continue for many years. The has obviously been some positive changes especially with the approval of the… Continue reading World Asthma Day 2023
ANONYMOUS-ASTHMA 