What does it mean to be dyslexic?

Is having dyslexia a gift or a superpower? Princess Beatrice recently spoke about her experience of having dyslexia. She referenced it as having a gift. This of course has sparked some debate among others with dyslexia. An article written in The Scotsman newspaper recently gave a very real account of what it is like to… Continue reading What does it mean to be dyslexic?

Virtual Pacing

Who knew attending events virtually was just as tiring as in person events. When you live with a chronic illness pacing is not a new concept. We have to continually make decisions about what we events we are going to attend, what we will miss and also what events are worth several days recovery and… Continue reading Virtual Pacing

Patient Experience of Mechanical Ventilation

https://youtu.be/sYYjzNS3c3A I was asked to record a video for part of the Respiratory Critical Care session at the European Respiratory Society Congress. The session was titled "New Developments in Mechanical Ventilation and Ventilator Weaning" and my video was to focus on my experience of being weaned from a ventilator. Im not going to lie it… Continue reading Patient Experience of Mechanical Ventilation