I started this blog back in 2008 while at University in Winchester as a way to get things off my chest, thrash out problems, make sense of situations which I was struggling with and also to record the good times. This is a place for me to unload, a place for people to learn and gain an insight into what it is like to live with a chronic health condition which is unpredictable and for others to read and know they are not alone. It will also contain posts about thing that have come my way which had I not been unwell I would never have done. I firmly believe that taking a step back and seeing if you can view your situation from a different perspective your attitude to illness can change. This happened to me and I want to share this with everyone too!
I have had severe asthma most of my life although it has progressively become more difficult to manage to the point I have had to stop working clinically and give up playing all sport. I am a qualified staff nurse and worked in a renal unit which I loved. I also used to play lacrosse but now involved from a coaching point of view from junior school age right through to national level players.
I have been very lucky as many opportunities have come my way as a result of my blog and awareness work I have been doing. Research is a big part of my life now. I am not a participant in research but am involved in research by helping to advise academics on study areas and study design for their research. I also help review documents for studies that are given to patients to make sure they can be understood. The main groups I am involved in are:
- Patient and Public Involvement lead at Asthma UK Centre for Applied Research
- SPEAK Asthma (Children & Young Persons Group AUKCAR) co-facilitator
- Astra Zeneca Patient Partnership Program
- Patient Engagement Group member Chief Scientist Office Scotland
- Edinburgh Clinical Research Facility Patient Advisory Group
- Intensive Care PPI Group Edinburgh
- Asthma UK Research and Policy Volunteer
I love being involved in research and regularly volunteer to speak on PPI courses for researchers, or at conferences as well either presenting, or a poster presentation and also giving a plenary too!!!
There are other groups I am involved in as well. It is not only research that I do but I also write for various different health companies, advocate for asthma, chronic illness and young people. I also volunteer at Lacrosse Scotland, this takes many different guises either coaching, assistant manager, child protection, general helper anything that needs done I get involved as I love lacrosse.
If you have any questions please message me. Contact details are on the contact page!